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A service that encourages and helps young people with epilepsy to share their mental health concerns about the condition is up and running in Huntingdon.

Hinchingbrooke Hospital’s paediatric epilepsy team has joined forces with a research psychology team at University College London to reach out to patients as young as six.

Called the Lucy Project, the research study encourages youngsters with epilepsy to talk to their healthcare professionals about any worries they have surrounding the condition, and feelings generated as a result.

This could range from feelings of sadness, to being unable to understand why they may be behaving differently at school or home – with the project providing a safe space to talk alongside psychological support and advice.

The child’s concerns are assessed and the relevant psychological help and talking therapy support is offered, where appropriate.

Leading the project on behalf of North West Anglia NHS Foundation Trust is clinical nurse specialist (paediatric epilepsy), Nicki Astle – who says the ‘joined up’ approach allows patients to be seen in her clinic and talk to her as the first point of contact.

Along with consultant Dr Rajalingam, Nicki works with researchers from the project who then assess and suggest ways in which to support the patient.

Nicki’s passion for wanting to support the patients in a non-clinical way began last year, and the Lucy Project now allows her to reach out to those who need help.

She said: “We started a few weeks ago and currently have six patients we now see on a regular basis. The programme means that children aren’t waiting or being signposted elsewhere to talk about things that are worrying or concerning them about their condition.

“Having epilepsy as a child is a big deal; it can impact on their mental health and the feedback from young patients is that they just want someone to talk to.

“I am delighted that we have the opportunity to take part in this study and being able to offer an extension to the clinical service we provide.”

The study runs until March 2024 when the findings will be assessed and the future of the service – including the possibility of rolling it out to Peterborough City Hospital.

To find out more visit gos-tr.thelucyproject@nhs.net